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Summary of Advances

In Autism Research

2021

Table of Contents | Appendices | News Release
Appendices

Citations List - Articles Selected for the 2021 Summary Of Advances


Screening and Diagnosis

Barger B, Benevides T, Riszk S, Rice C, Heiman H, Salmon A, Sanchez-Alvarez S. Race/ethnic inequities in conjoint monitoring and screening for U.S. children 3 and under: Disparities in Monitoring and Screening.. Disabil Health J. 2021 Aug 13:101179. [PMID: 34412986]

Feinberg E, Augustyn M, Broder-Fingert S, Bennett A, Weitzman C, Kuhn J, Hickey E, Chu A, Levinson J, Sandler Eilenberg J, Silverstein M, Cabral HJ, Patts G, Diaz-Linhart Y, Fernandez-Pastrana I, Rosenberg J, Miller JS, Guevara JP, Fenick AM, Blum NJ. Effect of Family Navigation on Diagnostic Ascertainment Among Children at Risk for Autism: A Randomized Clinical Trial From DBPNet. JAMA Pediatr. 2021 Mar 1;175(3):243-250. [PMID: 33427861]

Kaat AJ, Shui AM, Ghods SS, Farmer CA, Esler AN, Thurm A, Georgiades S, Kanne SM, Lord C, Kim YS, Bishop SL. Sex differences in scores on standardized measures of autism symptoms: a multisite integrative data analysis. . J Child Psychol Psychiatry. 2021 Jan;62(1):97-106. [PMID: 32314393]


Biology

Bradshaw J, McCracken C, Pileggi M, Brane N, Delehanty A, Day T, Federico A, Klaiman C, Saulnier C, Klin A, Wetherby A. Early social communication development in infants with autism spectrum disorder. Child Dev. 2021 Nov;92(6):2224-2234. [PMID: 34786700]

Plate S, Yankowitz L, Resorla L, Swanson MR, Meera SS, Estes A, Marrus N, Cola M, Petrulla V, Faggen A, Pandey J, Paterson S, Pruett JR Jr, Hazlett H, Dager S, St John T, Botteron K, Zwaigenbaum L, Piven J, Schultz RT, Parish-Morris J; IBIS Network. Infant vocalizing and phenotypic outcomes in autism: Evidence from the first 2 years. Child Dev. 2021 Oct 28. [PMID: 34708871]

Prescott KE, Ellis Weismer S. Children with ASD and Communication Regression: Examining Pre-Loss Skills and Later Language Outcomes Through the Preschool Years. J Autism Dev Disord. 2021 Jun 1. [PMID: 34061309]


Genetic and Environmental Factors

Lawrence KE, Hernandez LM, Fuster E, Padgaonkar NT, Patterson G, Jung J, Okada NJ, Lowe JK, Hoekstra JN, Jack A, Aylward E, Gaab N, Van Horn JD, Bernier RA, McPartland JC, Webb SJ, Pelphrey KA, Green SA, Bookheimer SY, Geschwind DH, Dapretto M; GENDAAR. Consortium. Impact of autism genetic risk on brain connectivity: a mechanism for the female protective effect.. Brain. 2021 May 29 [PMID: 34050743]

Lee BK, Eyles DW, Magnusson C, Newschaffer CJ, McGrath JJ, Kvaskoff D, Ko P, Dalman C, Karlsson H, Gardner RM. Developmental vitamin D and autism spectrum disorders: findings from the Stockholm Youth Cohort.. Mol Psychiatry. 2021 May;26(5):1578-1588. [PMID: 31695167]


Interventions

Rast JE, Anderson KA, Roux AM, Shattuck PT. Medication Use in Youth With Autism and Attention-Deficit/Hyperactivity Disorder. Acad Pediatr. 2021 Mar;21(2):272-279. [PMID: 32492579]

Sikich L, Kolevzon A, King BH, McDougle CJ, Sanders KB, Kim SJ, Spanos M, Chandrasekhar T, Trelles MDP, Rockhill CM, Palumbo ML, Witters Cundiff A, Montgomery A, Siper P, Minjarez M, Nowinski LA, Marler S, Shuffrey LC, Alderman C, Weissman J, Zappone B, Mullett JE, Crosson H, Hong N, Siecinski SK, Giamberardino SN, Luo S, She L, Bhapkar M, Dean R, Scheer A, Johnson JL, Gregory SG, Veenstra-VanderWeele J. Intranasal Oxytocin in Children and Adolescents with Autism Spectrum Disorder. N Engl J Med. 2021 Oct 14;385(16):1462-1473. [PMID: 34644471]

Whitehouse AJO, Varcin KJ, Pillar S, Billingham W, Alvares GA, Barbaro J, Bent CA, Blenkley D, Boutrus M, Chee A, Chetcuti L, Clark A, Davidson E, Dimov S, Dissanayake C, Doyle J, Grant M, Green CC, Harrap M, Iacono T, Matys L, Maybery M, Pope DF, Renton M, Rowbottam C, Sadka N, Segal L, Slonims V, Smith J, Taylor C, Wakeling S, Wan MW, Wray J, Cooper MN, Green J, Hudry K. Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism: A Randomized Clinical Trial of Outcomes to Diagnosis. JAMA Pediatr. 2021 Nov 1;175(11):e213298. [PMID: 34542577]


Services and Supports

Bhat A. Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services. Autism Res. 2021 Nov;14(11):2454-2470. [PMID: 34591364]

Sturm A, Williams J, Kasari C. Who gains and who loses? Sociodemographic disparities in access to special education services among autistic students. Autism Res. 2021 Aug;14(8):1621-1632. [PMID: 33904253]

Zuvekas SH, Grosse SD, Lavelle TA, Maenner MJ, Dietz P, Ji X. Healthcare Costs of Pediatric Autism Spectrum Disorder in the United States, 2003-2015. J Autism Dev Disord. 2021 Aug;51(8):2950-2958. [PMID: 33113106]


Lifespan

Geurts HM, McQuaid GA, Begeer S, Wallace GL. Self-reported parkinsonism features in older autistic adults: A descriptive study. Autism. 2021 Jun 21. [PMID: 34154378]

Schott W, Nonnemacher S, Shea L. Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services. J Autism Dev Disord. 2021 Apr;51(4):1188-1200. [PMID: 32671666]

Vivanti G, Tao S, Lyall K, Robins DL, Shea LL. The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder. Autism Res. 2021 Oct;14(10):2189-2199. [PMID: 34378867]

Wong J, Coster WJ, Cohn ES, Orsmond GI. Identifying School-Based Factors that Predict Employment Outcomes for Transition-Age Youth with Autism Spectrum Disorder. J Autism Dev Disord. 2021 Jan;51(1):60-74. [PMID: 32356081]


Infrastructure and Prevalence

Maenner MJ, Shaw KA, Bakian AV, Bilder DA, Durkin MS, Esler A, Furnier SM, Hallas L, Hall-Lande J, Hudson A, Hughes MM, Patrick M, Pierce K, Poynter JN, Salinas A, Shenouda J, Vehorn A, Warren Z, Constantino JN, DiRienzo M, Fitzgerald RT, Grzybowski A, Spivey MH, Pettygrove S, Zahorodny W, Ali A, Andrews JG, Baroud T, Gutierrez J, Hewitt A, Lee LC, Lopez M, Mancilla KC, McArthur D, Schwenk YD, Washington A, Williams S, Cogswell ME. Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. MMWR Surveill Summ. 2021 Dec 3;70(11):1-16. [PMID: 34855725]

Shaw KA, Maenner MJ, Bakian AV, Bilder DA, Durkin MS, Furnier SM, Hughes MM, Patrick M, Pierce K, Salinas A, Shenouda J, Vehorn A, Warren Z, Zahorodny W, Constantino JN, DiRienzo M, Esler A, Fitzgerald RT, Grzybowski A, Hudson A, Spivey MH, Ali A, Andrews JG, Baroud T, Gutierrez J, Hallas L, Hall-Lande J, Hewitt A, Lee LC, Lopez M, Mancilla KC, McArthur D, Pettygrove S, Poynter JN, Schwenk YD, Washington A, Williams S, Cogswell ME. Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018.. MMWR Surveill Summ. 2021 Dec 3;70(10):1-14. [PMID: 34855727]


Full Listing of Nominated Articles (Selected Articles Appear *Green)


Screening and Diagnosis

*Barger B, Benevides T, Riszk S, Rice C, Heiman H, Salmon A, Sanchez-Alvarez S. Race/ethnic inequities in conjoint monitoring and screening for U.S. children 3 and under: Disparities in Monitoring and Screening. Disabil Health J. 2021 Aug 13:101179. [PMID: 34412986]

*Feinberg E, Augustyn M, Broder-Fingert S, Bennett A, Weitzman C, Kuhn J, Hickey E, Chu A, Levinson J, Sandler Eilenberg J, Silverstein M, Cabral HJ, Patts G, Diaz-Linhart Y, Fernandez-Pastrana I, Rosenberg J, Miller JS, Guevara JP, Fenick AM, Blum NJ. Effect of Family Navigation on Diagnostic Ascertainment Among Children at Risk for Autism: A Randomized Clinical Trial From DBPNet. JAMA Pediatr. 2021 Mar 1;175(3):243-250. [PMID: 33427861]

*Kaat AJ, Shui AM, Ghods SS, Farmer CA, Esler AN, Thurm A, Georgiades S, Kanne SM, Lord C, Kim YS, Bishop SL. Sex differences in scores on standardized measures of autism symptoms: a multisite integrative data analysis. J Child Psychol Psychiatry. 2021 Jan;62(1):97-106. [PMID: 32314393]

Sicherman N, Law K, Lipkin PH, Loewenstein G, Marvin AR, Buxbaum JD. Information Avoidance and Information Seeking Among Parents of Children With ASD. Am J Intellect Dev Disabil. 2021 May 1;126(3):249-259. [PMID: 33910239]


Biology

*Bradshaw J, McCracken C, Pileggi M, Brane N, Delehanty A, Day T, Federico A, Klaiman C, Saulnier C, Klin A, Wetherby A. Early social communication development in infants with autism spectrum disorder. Child Dev. 2021 Nov;92(6):2224-2234. [PMID: 34786700]

Cardenas-de-la-Parra A, Lewis JD, Fonov VS, Botteron KN, McKinstry RC, Gerig G, Pruett JR Jr, Dager SR, Elison JT, Styner MA, Evans AC, Piven J, Collins DL; IBIS Network. A voxel-wise assessment of growth differences in infants developing autism spectrum disorder. Neuroimage Clin. 2021. [PMID: 33421871]

Choi B, Shah P, Rowe ML, Nelson CA, Tager-Flusberg H. A Longitudinal Study of Parent Gestures, Infant Responsiveness, and Vocabulary Development in Infants at Risk for Autism Spectrum Disorder. J Autism Dev Disord. 2021 Nov;51(11):3946-3958. [PMID: 33420647]

Gordon A, Yoon SJ, Tran SS, Makinson CD, Park JY, Andersen J, Valencia AM, Horvath S, Xiao X, Huguenard JR, Pașca SP, Geschwind DH. Long-term maturation of human cortical organoids matches key early postnatal transitions. Nat Neurosci. 2021 Mar;24(3):331-342. [PMID: 33619405]

Hammill C, Lerch JP, Taylor MJ, Ameis SH, Chakravarty MM, Szatmari P, Anagnostou E, Lai MC. Quantitative and Qualitative Sex Modulations in the Brain Anatomy of Autism. Biol Psychiatry Cogn Neurosci Neuroimaging. 2021 Sep;6(9):898-909. [PMID: 33713843]

Havdahl A, Farmer C, Schjølberg S, Øyen AS, Surén P, Reichborn-Kjennerud T, Magnus P, Bresnahan M, Hornig M, Susser E, Lipkin WI, Lord C, Stoltenberg C, Thurm A, Bishop S. Age of walking and intellectual ability in autism spectrum disorder and other neurodevelopmental disorders: a population-based study. J Child Psychol Psychiatry. 2021 Sep;62(9):1070-1078. [PMID: 33369747]

Jiménez JA, Zylka MJ. Controlling litter effects to enhance rigor and reproducibility with rodent models of neurodevelopmental disorders. J Neurodev Disord. 2021 Jan 4;13(1):2. [PMID: 33397279]

*Plate S, Yankowitz L, Resorla L, Swanson MR, Meera SS, Estes A, Marrus N, Cola M, Petrulla V, Faggen A, Pandey J, Paterson S, Pruett JR Jr, Hazlett H, Dager S, St John T, Botteron K, Zwaigenbaum L, Piven J, Schultz RT, Parish-Morris J; IBIS Network. Infant vocalizing and phenotypic outcomes in autism: Evidence from the first 2 years. Child Dev. 2021 Oct 28. [PMID: 34708871]

*Prescott KE, Ellis Weismer S. Children with ASD and Communication Regression: Examining Pre-Loss Skills and Later Language Outcomes Through the Preschool Years. J Autism Dev Disord. 2021 Jun 1. [PMID: 34061309]

Romeo RR, Choi B, Gabard-Durnam LJ, Wilkinson CL, Levin AR, Rowe ML, Tager-Flusberg H, Nelson CA 3rd. Parental Language Input Predicts Neuroscillatory Patterns Associated with Language Development in Toddlers at Risk of Autism. J Autism Dev Disord. 2021 Jun 29. [PMID: 34185234]

Tran XA, McDonald N, Dickinson A, Scheffler A, Frohlich J, Marin A, Kure Liu C, Nosco E, Şentürk D, Dapretto M, Spurling Jeste S. Functional connectivity during language processing in 3-month-old infants at familial risk for autism spectrum disorder. Eur J Neurosci. 2021 Mar;53(5):1621-1637. [PMID: 33043498]

Wickstrom J, Farmer C, Green Snyder L, Mitz AR, Sanders SJ, Bishop S, Thurm A. Patterns of delay in early gross motor and expressive language milestone attainment in probands with genetic conditions versus idiopathic ASD from SFARI registries. J Child Psychol Psychiatry. 2021 Nov;62(11):1297-1307. [PMID: 34382689]

Willsey HR, Exner CRT, Xu Y, Everitt A, Sun N, Wang B, Dea J, Schmunk G, Zaltsman Y, Teerikorpi N, Kim A, Anderson AS, Shin D, Seyler M, Nowakowski TJ, Harland RM, Willsey AJ, State MW. Parallel in vivo analysis of large-effect autism genes implicates cortical neurogenesis and estrogen in risk and resilience. Neuron. 2021 Mar 3;109(5):788-804.e8. [PMID: 33497602]


Genetic and Environmental Factors

Klei L, McClain LL, Mahjani B, Panayidou K, De Rubeis S, Grahnat AS, Karlsson G, Lu Y, Melhem N, Xu X, Reichenberg A, Sandin S, Hultman CM, Buxbaum JD, Roeder K, Devlin B. How rare and common risk variation jointly affect liability for autism spectrum disorder. Mol Autism. 2021 Oct 6;12(1):66. [PMID: 34615521]

*Lawrence KE, Hernandez LM, Fuster E, Padgaonkar NT, Patterson G, Jung J, Okada NJ, Lowe JK, Hoekstra JN, Jack A, Aylward E, Gaab N, Van Horn JD, Bernier RA, McPartland JC, Webb SJ, Pelphrey KA, Green SA, Bookheimer SY, Geschwind DH, Dapretto M; GENDAAR. Consortium. Impact of autism genetic risk on brain connectivity: a mechanism for the female protective effect. Brain. 2021 May 29 [PMID: 34050743]

Lee ASE, Ji Y, Raghavan R, Wang G, Hong X, Pearson C, Mirolli G, Bind E, Steffens A, Mukherjee J, Haltmeier D, Fan ZT, Wang X. Maternal prenatal selenium levels and child risk of neurodevelopmental disorders: A prospective birth cohort study. Autism Res. 2021 Dec;14(12):2533-2543. [PMID: 34558795]

*Lee BK, Eyles DW, Magnusson C, Newschaffer CJ, McGrath JJ, Kvaskoff D, Ko P, Dalman C, Karlsson H, Gardner RM. Developmental vitamin D and autism spectrum disorders: findings from the Stockholm Youth Cohort. Mol Psychiatry. 2021 May;26(5):1578-1588. [PMID: 31695167]

Mitra I, Huang B, Mousavi N, Ma N, Lamkin M, Yanicky R, Shleizer-Burko S, Lohmueller KE, Gymrek M. Patterns of de novo tandem repeat mutations and their role in autism. Nature. 2021 Jan;589(7841):246-250. [PMID: 33442040]

Modafferi S, Zhong X, Kleensang A, Murata Y, Fagiani F, Pamies D, Hogberg HT, Calabrese V, Lachman H, Hartung T, Smirnova L. Gene-Environment Interactions in Developmental Neurotoxicity: a Case Study of Synergy between Chlorpyrifos and CHD8 Knockout in Human BrainSpheres. Environ Health Perspect. 2021 Jul;129(7):77001. [PMID: 34259569]

Yoon S, Munoz A, Yamrom B, Lee YH, Andrews P, Marks S, Wang Z, Reeves C, Winterkorn L, Krieger AM, Buja A, Pradhan K, Ronemus M, Baldwin KK, Levy D, Wigler M, Iossifov I. Rates of contributory de novo mutation in high and low-risk autism families. Commun Biol. 2021 Sep 1;4(1):1026. [PMID: 34471188]


Interventions

Bottema-Beutel K, Crowley S, Sandbank M, Woynaroski TG. Research Review: Conflicts of Interest (COIs) in autism early intervention research - a meta-analysis of COI influences on intervention effects. J Child Psychol Psychiatry. 2021 Jan;62(1):5-15. [PMID: 32353179]

*Rast JE, Anderson KA, Roux AM, Shattuck PT. Medication Use in Youth With Autism and Attention-Deficit/Hyperactivity Disorder. Acad Pediatr. 2021 Mar;21(2):272-279. [PMID: 32492579]

*Sikich L, Kolevzon A, King BH, McDougle CJ, Sanders KB, Kim SJ, Spanos M, Chandrasekhar T, Trelles MDP, Rockhill CM, Palumbo ML, Witters Cundiff A, Montgomery A, Siper P, Minjarez M, Nowinski LA, Marler S, Shuffrey LC, Alderman C, Weissman J, Zappone B, Mullett JE, Crosson H, Hong N, Siecinski SK, Giamberardino SN, Luo S, She L, Bhapkar M, Dean R, Scheer A, Johnson JL, Gregory SG, Veenstra-VanderWeele J. Intranasal Oxytocin in Children and Adolescents with Autism Spectrum Disorder. N Engl J Med. 2021 Oct 14;385(16):1462-1473. [PMID: 34644471]

*Whitehouse AJO, Varcin KJ, Pillar S, Billingham W, Alvares GA, Barbaro J, Bent CA, Blenkley D, Boutrus M, Chee A, Chetcuti L, Clark A, Davidson E, Dimov S, Dissanayake C, Doyle J, Grant M, Green CC, Harrap M, Iacono T, Matys L, Maybery M, Pope DF, Renton M, Rowbottam C, Sadka N, Segal L, Slonims V, Smith J, Taylor C, Wakeling S, Wan MW, Wray J, Cooper MN, Green J, Hudry K. Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism: A Randomized Clinical Trial of Outcomes to Diagnosis. JAMA Pediatr. 2021 Nov 1;175(11):e213298. [PMID: 34542577]


Services and Supports

*Bhat A. Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services. Autism Res. 2021 Nov;14(11):2454-2470. [PMID: 34591364]

Hammersmith KJ, Harlan TA, Fenning RM, Chan J, Stephenson KG, Macklin EA, Casamassimo PS, Townsend JA, Butter EM, Steinberg-Epstein RB. Correlates of oral health fatalism in caregivers of children with autism spectrum disorder. Spec Care Dentist. 2021 Mar;41(2):145-153. [PMID: 33449432]

*Sturm A, Williams J, Kasari C. Who gains and who loses? Sociodemographic disparities in access to special education services among autistic students. Autism Res. 2021 Aug;14(8):1621-1632. [PMID: 33904253]

White LC, Law JK, Daniels AM, Toroney J, Vernoia B, Xiao S; SPARK Consortium, Feliciano P, Chung WK. Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort. J Autism Dev Disord. 2021 Jan 2:1–8. [PMID: 33387233]

*Zuvekas SH, Grosse SD, Lavelle TA, Maenner MJ, Dietz P, Ji X. Healthcare Costs of Pediatric Autism Spectrum Disorder in the United States, 2003-2015. J Autism Dev Disord. 2021 Aug;51(8):2950-2958. [PMID: 33113106]


Lifespan

Cost KT, Zaidman-Zait A, Mirenda P, Duku E, Zwaigenbaum L, Smith IM, Ungar WJ, Kerns C, Bennett T, Szatmari P, Georgiades S, Waddell C, Elsabbagh M, Vaillancourt T. "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time. J Autism Dev Disord. 2021 Dec;51(12):4560-4574. [PMID: 33532881]

Curry AE, Metzger KB, Carey ME, Sartin EB, Huang P, Yerys BE. Comparison of Motor Vehicle Crashes, Traffic Violations, and License Suspensions Between Autistic and Non-Autistic Adolescent and Young Adult Drivers. J Am Acad Child Adolesc Psychiatry. 2021 Jul;60(7):913-923. [PMID: 33453361]

*Geurts HM, McQuaid GA, Begeer S, Wallace GL. Self-reported parkinsonism features in older autistic adults: A descriptive study. Autism. 2021 Jun 21. [PMID: 34154378]

*Schott W, Nonnemacher S, Shea L. Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services. J Autism Dev Disord. 2021 Apr;51(4):1188-1200. [PMID: 32671666]

*Vivanti G, Tao S, Lyall K, Robins DL, Shea LL. The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder. Autism Res. 2021 Oct;14(10):2189-2199. [PMID: 34378867]

*Wong J, Coster WJ, Cohn ES, Orsmond GI. Identifying School-Based Factors that Predict Employment Outcomes for Transition-Age Youth with Autism Spectrum Disorder. J Autism Dev Disord. 2021 Jan;51(1):60-74. [PMID: 32356081]


Infrastructure and Prevalence

Harrop C, Bal V, Carpenter K, Halladay A. A lost generation? The impact of the COVID-19 pandemic on early career ASD researchers. Autism Res. 2021 Jun;14(6):1078-1087. [PMID: 33759380]

*Maenner MJ, Shaw KA, Bakian AV, Bilder DA, Durkin MS, Esler A, Furnier SM, Hallas L, Hall-Lande J, Hudson A, Hughes MM, Patrick M, Pierce K, Poynter JN, Salinas A, Shenouda J, Vehorn A, Warren Z, Constantino JN, DiRienzo M, Fitzgerald RT, Grzybowski A, Spivey MH, Pettygrove S, Zahorodny W, Ali A, Andrews JG, Baroud T, Gutierrez J, Hewitt A, Lee LC, Lopez M, Mancilla KC, McArthur D, Schwenk YD, Washington A, Williams S, Cogswell ME. Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. MMWR Surveill Summ. 2021 Dec 3;70(11):1-16. [PMID: 34855725]

*Shaw KA, Maenner MJ, Bakian AV, Bilder DA, Durkin MS, Furnier SM, Hughes MM, Patrick M, Pierce K, Salinas A, Shenouda J, Vehorn A, Warren Z, Zahorodny W, Constantino JN, DiRienzo M, Esler A, Fitzgerald RT, Grzybowski A, Hudson A, Spivey MH, Ali A, Andrews JG, Baroud T, Gutierrez J, Hallas L, Hall-Lande J, Hewitt A, Lee LC, Lopez M, Mancilla KC, McArthur D, Pettygrove S, Poynter JN, Schwenk YD, Washington A, Williams S, Cogswell ME. Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. MMWR Surveill Summ. 2021 Dec 3;70(10):1-14. [PMID: 34855727]


IACC LogoAbout the IACC

The Interagency Autism Coordinating Committee (IACC) is a federal advisory committee charged with coordinating federal activities concerning autism spectrum disorder (ASD) and providing advice to the Secretary of Health and Human Services (HHS) on issues related to autism. The Committee was established by Congress under the Children's Health Act of 2000, reconstituted under the Combating Autism Act (CAA) of 2006, and renewed most recently under the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2019.

Membership of the Committee includes a wide array of federal agencies involved in autism research and services, as well as public stakeholders, including autistic adults, family members of those on the autism spectrum, advocates, service providers, and researchers, who represent a variety of perspectives. The IACC membership is composed to ensure that the Committee is equipped to address the wide range of issues and challenges experienced by individuals and families in the autism community.

Under past and present authorizing legislation, the IACC was and is currently required to (1) develop and annually update a strategic plan for autism research, (2) develop and annually update a summary of advances in autism research, and (3) monitor federal activities related to autism.

Through these and other activities, the IACC provides guidance to HHS and partners with other federal departments, research and advocacy organizations, and the broader autism community to accelerate research and enhance services with the goal of positively impacting the lives of people on the autism spectrum and their families.

***

For more information about the IACC, see https://iacc.hhs.gov.


Interagency Autism Coordinating Committee Member Roster


Chair

  • Joshua Gordon, M.D., Ph.D. Director National Institute of Mental Health National Institutes of Health Bethesda, MD

Federal Members

  • Skye Bass, L.C.S.W. Program Coordinator TeleBehavioral Health Center of Excellence Division of Behavioral Health Indian Health Service Rockville, MD
  • Diana W. Bianchi, M.D. Director Eunice Kennedy Shriver National Institute of Child Health and Human Development National Institutes of Health Bethesda, MD
  • Anita Everett, M.D., D.F.A.P.A. Director Center for Mental Health Services Substance Abuse and Mental Health Services Administration Rockville, MD
  • Tiffany R. Farchione, M.D. Director Division of Psychiatry Center for Drug Evaluation and Research U.S. Food and Drug Administration Silver Spring, MD
  • Maria Fryer, M.S. Program Analyst Bureau of Justice Assistance U.S. Department of Justice Washington, DC
  • Dayana J. Garcia, M.Ed. Disabilities and Inclusion Specialist Office of Head Start Administration for Children and Families Washington, DC
  • Elaine Cohen Hubal, Ph.D. Senior Science Advisor Center for Public Health and Environmental Assessment U.S. Environmental Protection Agency Research Triangle Park, NC
  • Jennifer Johnson, Ed.D. Deputy Commissioner Administration on Disabilities Administration for Community Living Washington, DC
  • Walter J. Koroshetz, M.D. Director, National Institute of Neurological Disorders and Stroke National Institutes of Health Bethesda, MD
  • Leah Lozier, Ph.D. Social Science Analyst Office of Policy Development and Research U.S. Department of Housing and Urban Development Washington, DC
  • Alison R. Marvin, Ph.D. Statistician/Health Sciences Researcher Division of the Analytics Center of Excellence Social Security Administration Woodlawn, MD
  • Matthew Miller, Ph.D., M.P.H. Director VA Suicide Prevention Program Office of Mental Health and Suicide Prevention Veterans Health Administration U.S. Department of Veterans Affairs Washington, DC
  • Kamila Mistry, Ph.D., M.P.H. Health Scientist Administrator Associate Director Office of Extramural Research, Education, and Priority Populations Senior Advisor Value Based Care Transformation Child Health and Quality Improvement Agency for Healthcare Research and Quality Rockville, MD
  • Lauren Raskin Ramos, M.P.H. Director Division of Maternal and Child Health Workforce Development Maternal and Child Health Bureau Health Resources and Services Administration Rockville, MD
  • Karyl Rattay, M.D., M.S., FAAP Director Division of Human Development and Disability Centers for Disease Control and Prevention Atlanta, GA
  • Jodie Sumeracki, B.A. Senior Policy Advisor Disabled and Elderly Health Programs Group Centers for Medicare and Medicaid Services Baltimore, MD
  • Lawrence A. Tabak, D.D.S, Ph.D. Acting Director National Institutes of Health Bethesda, MD
  • Debara L. Tucci, M.D., M.S., M.B.A., F.A.C.S. Director National Institute on Deafness and Other Communication Disorders National Institutes of Health Bethesda, MD
  • Larry Wexler, Ed.D. Director Research to Practice Division Office of Special Education Programs U.S. Department of Education Washington, DC
  • Nicole Williams, Ph.D. Program Manager Congressionally Directed Medical Research Programs U.S. Department of Defense Frederick, MD
  • Taryn Mackenzie Williams, M.A. Assistant Secretary Office of Disability Employment Policy U.S. Department of Labor Washington, DC
  • Richard Woychik, Ph.D. Director National Institute of Environmental Health Sciences Director National Toxicology Program National Institutes of Health Research Triangle Park, NC

Public Members

  • Maria Mercedes Avila, Ph.D., M.S.W., M.Ed. Associate Professor Department of Pediatrics Director Vermont LEND Program Larner College of Medicine University of Vermont Burlington, VT
  • Alice Carter, Ph.D. Professor Department of Psychology University of Massachusetts Boston Boston, MA
  • Sam Crane, J.D. Legal Director Quality Trust for Individuals with Disabilities Washington, DC
  • Aisha Dickerson, Ph.D. Assistant Professor Department of Epidemiology Bloomberg School of Public Health Johns Hopkins University Baltimore, MD
  • Dena Gassner, M.S.W. Ph.D. Candidate in Social Work Adelphi University West Hempstead, NY Adjunct Professor Department of Health Sciences Towson University Towson, MD
  • Morénike Giwa Onaiwu, M.A. Equity, Justice, and Representation Executive Committee Chair Autistic Women & Nonbinary Network Humanities Scholar Center for the Study of Women, Gender, and Sexuality Rice University Houston, TX
  • Alycia Halladay, Ph.D. Chief Science Officer Autism Science Foundation New York, NY Adjunct Faculty Department of Pharmacology and Toxicology Rutgers University Piscataway, NJ
  • Craig Johnson, B.A. Founder and President Champions Foundation Houston, TX
  • Yetta Myrick, B.A. Founder and President DC Autism Parents Washington, DC
  • Lindsey Nebeker, B.A. Freelance Presenter/Trainer Alexandria, VA Development Specialist Autism Society of America Rockville, MD
  • Jenny Mai Phan, Ph.D. Research Post-Doctoral Fellow Center for Neuroscience Research Center for Autism Spectrum Disorders Children's National Hospital Washington, DC
  • Joseph Piven, M.D. Thomas E. Castelloe Distinguished Professor of Psychiatry and Pediatrics Director University Center of Excellence in Developmental Disabilities (UCEDD) University of North Carolina-Chapel Hill Chapel Hill, NC
  • JaLynn R. Prince, B.F.A. Co-Founder, President, and Chair Madison House Autism Foundation Rockville, MD
  • Susan Rivera, Ph.D. Dean College of Behavioral & Social Sciences Professor Department of Psychology University of Maryland College Park, MD
  • Matthew Siegel, M.D. Associate Professor of Psychiatry and Pediatrics Tufts University School of Medicine Boston, MA Vice President of Medical Affairs Developmental Disorders Service Line Maine Behavioral Healthcare Westbrook, ME
  • Ivanova Smith, B.A. Self-Advocate Faculty Leadership Education in Neurodevelopmental and Related Disabilities University of Washington Tacoma, WA
  • Hari Srinivasan Student Paul and Daisy Soros Fellow Vanderbilt University Albany, CA
  • Helen Tager-Flusberg, Ph.D. Professor Department of Psychological and Brain Sciences Director Center for Autism Research Excellence Boston University Boston, MA
  • Julie Lounds Taylor, Ph.D. Associate Professor Department of Pediatrics Investigator Vanderbilt Kennedy Center Vanderbilt University Medical Center Nashville, TN
  • Paul Wang, M.D. Deputy Director Clinical Research Associates, LLC Simons Foundation New York, NY Associate Clinical Professor of Pediatrics Yale University School of Medicine New Haven, CT
  • Stephen Whitlow, J.D. Executive Director Transition Services Merakey Baton Rouge, LA

Office of Autism Research Coordination Staff

6001 Executive Boulevard, Room 7215, Bethesda, MD 20892
National Institute of Mental Health
National Institutes of Health
Email: IACCPublicInquiries@mail.nih.gov
Website: https://iacc.hhs.gov
  • Susan Daniels, Ph.D. Director, OARC Executive Secretary, IACC Acting HHS National Autism Coordinator
  • Oni Celestin, Ph.D. Health Science Policy Analyst
  • Katrina Ferrara, Ph.D. Health Science Policy Analyst
  • Steven Isaacson, C.E.S.P. Autism Policy Analyst
  • Tianlu Ma, Ph.D. Health Science Policy Analyst
  • Rebecca Martin, M.P.H. Public Health Analyst
  • Angelice Mitrakas, B.A. Management Analyst
  • Luis Valdez-Lopez, M.P.H. Health Science Policy Analyst
  • Jeffrey Wiegand, B.S. Web Development Manager

Cover Design
NIH Medical Arts Branch

Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
Interagency Autism Coordinating Committee (IACC). 2021 IACC Summary of Advances in Autism Research. April 2023. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: https://iacc.hhs.gov/publications/summary-of-advances/2021/.

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